Sunday, October 27, 2013
Wednesday, October 9, 2013
Sammie has learned to sing. Wordless, maybe, but intentional, rhythmic, tonal (most of the time) and full of gusto.
Twinkle Twinkle has never sounded so beautiful.
(This is far from representative of how he actually can sing the song- he didn't want me filming him, so I had to catch him while he wasn't paying attention and playing on his ipad. ;) But you get the point...
Saturday, October 5, 2013
My dearest children,
They say that it takes a village to raise a child. That, in order to meet every human being's unique and diverse needs, they need to be surrounded by pillars of strength that will raise them up to their fullest potential.
There are very few things in life that I can claim to know with absolute certainty, but I know this to be true.
You are both too young to comprehend selflessness; too young to know of sacrifice and of gratitude. So, on your behalf, I will allow my cup of thankfulness to overflow and I rest my heart each night cognizant of thr incredibly blessed existence that you both live.
I shed tears of appreciation for our village, and tonight is my Thanksgiving.
Let me introduce you to your neighbours, dear ones. Not the ones who share our fences, but the ones who share in and help to write your story.
Let me tell you of the people I am honoured to call my friends.
Let me tell you of the teachers- some by trade, and others by passion. They are the ones I turn to when I lack the knowledge for how to best guide you. They fill my mind with resources and tools to help nurture and grow you in every way. They are my living encyclopedias of information, my sounding boards, my tireless wells of opportunity and growth. They have guided me through, from the very first time I dreamt of your faces, to your birth, and every stage of life that has followed since. They are my mentors.
Let me tell of you of the healers, some by trade, and others by passion. They are the ones who teach me of the wonder of the human body. They cherish my ability to grow and sustain life, amd carry this force through the years as I continue to nurture your spirits. They mend my wounds, on my body and on my soul, caring and treating every scar back to life. They have seen me broken. They have made me whole again.
Let me tell you of the counsellors, some by trade and others by passion. They are the ones to whom I intrust my deepest fears and my grandest hopes. They wipe the tears from my cheeks, and share laughter and joy with me in moments of triumph. They open their hearts when my own needs a safe place to rest. They give without condition, relentlessly committed to our happiness.
Let me tell you about your family, the greater community that we engage with. They are the ones whose lives and experiences bring meaning to our own. Let me tell you how each of them is a constant reminder that we are not alone, that together we are building a world much larger than what we see here today.
Let me tell you about the jokers.
About the entertainers.
About the athletes.
About the politicians.
About the musicians.
About the brothers, and the sisters, and the fathers and the mothers...
Let me tell you about them all.
These people, these pillars in our lives.
Let me tell you how, because of them, you are never really alone.
We are one community.
Let me tell you of them, and when I do, let me teach you to be like them. For there is no expression of gratitude or flattery finer than to emulate the good works you have been shown and to share more love in the world.
Let me teach you to be mirrors, reflecting always the kindess, love, compassion and support that you receive.
Let me tell you of the wonderful village of friendship that we call home. And let me teach you to take from it, and when you are older, build onto it. Help it to spread. Help it to grow.
Because it takes a village to raise a child.
And it takes a village to lead a full and rich life.
I am so very grateful for mine.
Friday, October 4, 2013
Going GFCF really isn't all that challenging once you are used to it. Granted, it definitely eliminates the "spontaneity" options like eating out and grabbing fast-food. And it costs a holy fortune. But, overall, the transition is going well. Heck, Sammie even tried BBQ ribs last night...it kind of broke my brain.
The biggest inconvenience of GFCF is limiting snack options in public settings. Take Halloween for example. Trick or Treating is now something to be very seriously considered, weighted, researched and- tragically- discarded. There is no way I can risk just handing my ASD kiddo a whack load of candy, most of which I may not be able to properly check for ingredients, without seriously considering the consequences. Given that the diet is so new and that Sammie is thriving so much, I can not justify exposing him to possible allergens and throwing his health back in jeopardy.
So, Halloween is out.
Or is it?
"If Mohammed can't go to the Mountain, the Mountain will go to Mohammed."
Halloween is simply too much fun and too much a part of social learning for me to cut it all together.
So today I sat down and wrote a letter to my neighbours.
I asked them to join me on a project that I know would rock Sammie's socks right off his feet.
I hope they will join me.
I hope they won't judge me.
I hope I get to have a Halloween with my son worth remembering forever.
Is there a Halloween Fairy-Godmother? Cause I sure could use three wishes right about now.
- Jason and Zita will purchase and decorate several different train cars in a Halloween theme.
- On October 30th, Zita will drop a train car and a picture of Sammie in his costume (so you will recognize him at the door) into the mailbox of every house that is willing to participate in our project. (Please note: We know and respect that many of you may not celebrate Halloween, or would prefer not to participate for personal reasons. We truly will understand if you decide this activity is not for you.)
- On the 31st, Sammie will go around to only those houses and “trick or treat” for his train cars. He will be trick or treating between the hours of 6pm and 730pm. When he comes to your door, instead of giving him candy, you would give him the train car that we dropped off the day before.
- Once he returns home, he will find a fabulous “Graveyard” themed train track to play with to his heart’s content.
- Fill out the RSVP card and return it to us in the pre-stamped, pre-addressed envelope we have provided for you.
- Email your RSVP to us at firstname.lastname@example.org. Please include the following information: Name (if you would like to disclose it) address, and best time to visit you on October 31st (between 6pm and 730pm)
- Call us with your RSVP at 780-757-1024. If we are not home, please leave a voicemail message with your RSVP information: Name (if you would like to disclose it), address, and best time to visit you on October 31st (between 6pm and 730pm)